Documentary web series · 10 Episodes · 2024

MED13L Syndrome in 9 Questions

An information journey for families and medical staff facing MED13L syndrome. 10 episodes blending researcher and clinician perspectives.

Full documentary web series · YouTube playlist

Aims of the Series

  • Understand MED13L syndrome and learn to recognise it
  • Understand the current state of research and potential therapies
  • Understand the daily lives of families affected by MED13L syndrome

My Role

Co-direction

Technical direction

Post-production

Format

Documentary web series

10 episodes

YouTube streaming

Audience

Families affected by MED13L syndrome

Medical professionals

Researchers

Credits

  • Direction Philippe Boudoux & Damien Rayuela
  • Editing Philippe Boudoux
  • Featuring Prof. Jamal Ghoumid
  • Featuring Dr Roseline Caumes
  • With thanks to Françoise Ropert Conquer